Hi Parents of Menkes boys!
We thought we'd use this web page to start posting some of the specifics about our Jack and maybe there will be a few things to help you better deal with the challenges you and your Menkes sons will face.
NOTE: We are not health care professionals and consider the below comments to be personal reflections on choices we made/make. We accept NO liability for your choices. Talk to your own doctors before making a change to your son's treatments or care.
 | Here's a religious reflection about our son's purpose in life. |
| Jack's Medical Journey and Story. |
| Here's a link to our blog about searching for a Miracle Max healer. |
| Tired of Repetition?!?! Try pre-printing a medical info/emergency page. |
| Constipation. |
| Formula and Feeding. | ||||||
| Feeding Tube? To Tube or Not to Tube. | ||||||
| Copper Histidine | ||||||
| Hospice Care | ||||||
| Developmental Goals | ||||||
| Suction Machine | ||||||
| Helplessness | ||||||
| Linking to other Menkes parents:
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| Menkes Education
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